2-year-old Jayden had a stem cell transplant in early 2022 for a rare condition called Haemophagocytic Lymphohistiocytosis. His post transplant journey has been complicated by CMV infection.
The Azaylia Foundation donated £10,000 to Birmingham Children’s Hospital to obtain a new treatment for Jayden which needs to be manufactured locally, from a donation of blood from his mother, for which costs are not covered by the NHS.
12-year-old Yuvraj is suffering from GVHD (Graft Versus Host Disease), a complication of his stem cell transplant, and was not responding to any treatment offered so far.
The Azaylia Foundation donated £10,000 to Birmingham Children’s Hospital to obtain a new treatment for Yuvraj called Ruxolitinib, a treatment that is not funded on the NHS.
Seven year old Aaron has Myelodysplasia. He received an unrelated donor stem cell transplant in August 2020, but he unfortunately developed severe chronic graft versus host disease (cGVHD) which has been resistant to multiple lines of standard NHS therapy.
The Azaylia Foundation has donated £10,000 to Birmingham Children’s Hospital to treat Aaron with ruxolitinib for six months, a relatively new agent that has shown excellent results in clinical trials but is not yet funded for patients his age by the NHS.
Sit Down with Safiyya is our Instagram series which navigates through grief, mutual support and challenges while fighting childhood cancer. Through a live conversation format, Safiyya meets with other parents, childhood cancer charities and medical experts.
Episodes can be found on the @azayliafoundation Instagram profile.
The Azaylia Foundation donated £10,000 towards Rudi’s immunotherapy treatment trial in Seattle. Since 2020 he has been battling against a grade 4 brain tumour (pineoblastoma) and cruelly, just as he started to feel better after chemo, an MRI showed the tumours had come back.
After various obstacles because of not being a US citizen, Rudi was finally accepted into a trial in Seattle with the family taking on the enormous task of raising funds to pay for the treatment, which is not covered by the NHS. To donate directly to Rudi, please visit his family’s GoFundMe campaign.
On Tuesday, April 26, thanks to the hard work of Charlotte Fairall of Sophie’s Legacy, Parliament heard new evidence that childhood cancer is not rare, alongside a call for creating a new childhood cancer mission to complement the Government’s existing 10 year cancer plan, which currently does not adequately address childhood cancer.
The Azaylia Foundation supported Sophie’s Legacy by helping to create awareness around the debate, which our CEO attended in person. We worked with our community to send their MPs the template emails we provided, in the first instance to encourage MPs to attend the debate, and in a second instance to highlight the shortfalls of the Government’s response during the debate and to demand change.
Over 3000 emails were sent to MPs as a result of this campaign, many replied to their constituents stating they had written to the Secretary of State for Health and Social Care requesting clarification and further action.
Due to a systemic underfunding of childhood cancer, children in the UK are regularly given treatments developed for adults, often leaving them with life long damage even in the case of survival.
We are beyond honoured to announce that we have donated £101,850 to the University of Oxford’s Department of Paediatrics, to fund the Scientific Advances for Infant Leukaemia (SAIL) programme, a collaboration between the University of Oxford and Great Ormond Street Hospital, to research the development of new, personalised children treatments for acute lymphoblastic leukaemia (ALL), and to create a roadmap for all types of leukaemia.
Azaylia’s Wall (Nuneaton) to Trafalgar Square (London), 109 miles.
A tough physical and emotional journey for Ashley and family to commemorate Azaylia’s anniversary with the community, while at the same time raising awareness at a time when it is so important for everyone – government, institutions, media and the public – to understand that childhood cancer is not rare and is significantly underfunded.
Our incredible community carried the team (Ashley, Matty and Tamika) with words of encouragement and unbelievable energy every step of the way. Safiyya joined on her bicycle for 50 miles, and over 500 people greeted them on arrival at Trafalgar Square. All gear, equipment and vehicles for this challenge were either loaned or donated to the team.
The Azaylia Foundation are pleased to be supporting Lee and his family with a £10,000 donation towards his proton beam therapy in Spain. Three-year old Lee has rhabdomyosarcoma fusion positive (a really aggressive form of cancer). He had it in his leg, groin, bones, bone marrow, lower spine and upper spine.
After treatment managed to clear his body of the cancer completely, devastatingly it has recently spread to his brain where he has five tumours requiring treatment not covered by the NHS.
Unfortunately, on June 26, 2022, Lee passed away. Our hearts are with his family as their beautiful superhero joins the angels.
We are so thrilled to officially announce our collection with In The Style, who will be donating 100% of the profits to The Azaylia Foundation.
This capsule collection of positive and empowering quotes comes in 6 designs, inspired by Safiyya, which are available in sizes 6-28 for adults and 1-12 for kids.
To see the collection, please click here to visit In The Style.
We started this together
and, together, we WILL be
FEARLESS IN THE
FIGHT AGAINST
CHILDREN’S CANCER
