2-year-old Jayden had a stem cell transplant in early 2022 for a rare condition called Haemophagocytic Lymphohistiocytosis. His post transplant journey has been complicated by CMV infection.

The Azaylia Foundation donated £10,000 to Birmingham Children’s Hospital to obtain a new treatment for Jayden which needs to be manufactured locally, from a donation of blood from his mother, for which costs are not covered by the NHS.

12-year-old Yuvraj is suffering from GVHD (Graft Versus Host Disease), a complication of his stem cell transplant, and was not responding to any treatment offered so far.

The Azaylia Foundation donated £10,000 to Birmingham Children’s Hospital to obtain a new treatment for Yuvraj called Ruxolitinib, a treatment that is not funded on the NHS.

Seven year old Aaron has Myelodysplasia. He received an unrelated donor stem cell transplant in August 2020, but he unfortunately developed severe chronic graft versus host disease (cGVHD) which has been resistant to multiple lines of standard NHS therapy.

The Azaylia Foundation has donated £10,000 to Birmingham Children’s Hospital to treat Aaron with ruxolitinib for six months, a relatively new agent that has shown excellent results in clinical trials but is not yet funded for patients his age by the NHS.

The Azaylia Foundation donated £10,000 towards Rudi’s immunotherapy treatment trial in Seattle. Since 2020 he has been battling against a grade 4 brain tumour (pineoblastoma) and cruelly, just as he started to feel better after chemo, an MRI showed the tumours had come back.

After various obstacles because of not being a US citizen, Rudi was finally accepted into a trial in Seattle with the family taking on the enormous task of raising funds to pay for the treatment, which is not covered by the NHS.

Heartbreakingly, Rudi passed away in January 2023.

The Azaylia Foundation are pleased to be supporting Lee and his family with a £10,000 donation towards his proton beam therapy in Spain. Three-year old Lee has rhabdomyosarcoma fusion positive (a really aggressive form of cancer). He had it in his leg, groin, bones, bone marrow, lower spine and upper spine.

After treatment managed to clear his body of the cancer completely, devastatingly it has recently spread to his brain where he has five tumours requiring treatment not covered by the NHS.

Unfortunately, on June 26, 2022, Lee passed away. Our hearts are with his family as their beautiful superhero joins the angels.

Alexander, a 7 year old boy fighting a brain tumour, was granted £10,000 by The Azaylia Foundation towards his immunotherapy treatment in Germany in November 2021.

He has since had to undertake urgent inhibitor treatment at The Royal Marsden Hospital in London at a cost of £64,399.92 (not covered by the NHS), to stop the growth and spread of his tumour before he is able to receive treatment in Germany.

Ashley then ran a marathon on Christmas Day in order to raise awareness for children with cancer and – specifically – funds for Alexander, for which our incredible community stepped up to raise an additional £39,000. To contribute directly to Alexander’s fundraiser, please visit the Azaylia for Alexander Christmas Marathon GoFundMe campaign

The Azaylia Foundation is proud to announce that a donation of £10,000 has been made to support 15 year old Oli in his brave battle against an aggressive form of brain cancer. Oli was diagnosed in July 2021 after suffering from headaches and vision problems. He went from being a healthy, Chelsea loving school boy to undergoing ten hour surgery and a gruelling six week course of chemo and radiotherapy in the blink of an eye.

The funds from The Azaylia Foundation will help towards the cost of immunotherapy vaccines for brain tumours and brain cancer which are not covered by the NHS. They are designed to recognise specific proteins produced by cancer cells in the hope that the patient’s immune system will then recognise and attack those cells to prevent the cancer from growing back.